Thursday, August 26, 2010

More Variety for Lillie Girl


I must say with a daughter with Eosinophic Esophagitis Iam always on the look out for more variety of foods for her...I always try to look for foods that will bring happiness to her because Iam always telling her she cant have this or she cant have that...The joy that comes when you are able to say "YES" you can have this food...is the best feeling a mom can have....Lillie is amost 4 years old and understands she cant have all foods and that in its self is a blessing because she is starting to understand it will make her sick and throw up....The only hard part now is when she ask" mommy that make me sick? can Lillie have that? I love it?" and me saying " No Sweetie " it will make Lillie sick...You would think I would get use to saying no but the truth is that....It hurts every single time...I know I can replace certain things like her at birthday parties...giving her gum or candy instead of cake and ice cream but it still hurts to say she cant have it and I dont know why because she does not know what its like to even have certain foods because she has never had them I think its just a mom thing....I know she can have more then some EE kids and Iam truly blessed she can still eat foods and is not on a strict amino based formula only diet like some eos kids and if there comes a day where she does have to then I know God will supplie all of Lillies and our familes needs...He has been faithful time and time again through this journey with lillie girl.



All this to say I was out of town food shopping and went to the dollar store and next door to the dollar store was a store called "Nutrition Shoppe" so I of corse thought " hmmm maybe lillie can have some foods in there" I went in and was feeling dicouraged as I couldnt find anything she could have because everything had at least one ingreident she couldnt have....so as I went to check out with some lolly pops for lil I asked the lady do you have anything for my daughter who cant have beef,Lamb, wheat, soy, sunflower, Garlic, all dairy, all fish, all nuts and she said "yes" I honestly was thinking she just wanted me to buy something and just said yes to try and look or something..but my thoughts were not true lol because she had handed me corn pasta,and brownie mix and pancake mix...."WHAT"I had past them all up before because I had thought there was no reason to even look because of what is normally in these things...I was suprised and was overwhelmed with joy when I seen none of the foods she is allergic to on the ingredients...and so far the first week we have made the pancakes and I made the whole bag and food saved them in packs of 2 for the mornings and I even put blue berries in them...just to have her pull them all out each morning:) Lillie loved them and never left any not eaten and week 2 we made the corn pasta and I cooked turkey meat and mixed it up and she did great and had no allergic reaction and loved it.We are going to try the brownies this week and I forgot to mention why this is so exciting and its because Lillie has never had pancakes,brownies or pasta :~)

I took pictures of the foods just incase someone else who has allergies or Eos disease can possibly have them as well... Even though it says to make with eggs we just put applesause in for the eggs and it work just fine






Addison wanted to help make Lillies pancakes..We tried a bit of one and both decided they tasted totally diffrent then the ones we eat lol and are thankful for the ones we eat....:)

Tuesday, August 24, 2010

Things Are In Full Swing


div>I am so glad Iam actually sitting down to blog....So we started school last week on monday and going on our second week...Addison is in 1st grade and we actually switched her work books to "Rod and Staff"and she seriously loves them and is confident about the work she does..infact a couple days ago she said to me "mommy Iam so proud of my self because I did all my work" in fact I was very happy for her because last year was a lot diffrent and I think the work books overwhelmed her.






Anthony is in kindergarden and he is learning that "We do school" He would like to play more then work and he is getting the idea of what we do everyday now.... Addison I think has got it down really well.....we do work -dont play-get it all done before 3pm so I can play with 2 of my best friends(she daily plays with these girls and they are just presious and find Addison just as special as she finds them.



Anthony is very great with his work and when he does his work he does a good job and catches on very well.....They are very eager in the morning to start school and I just pray it will last the year through.

Lillie is going to pre-school 5 days a week and at first I was a bit nervious to stick her in school like that everyday...but as the occupational - speeach- physical thearapist had tested her for this IEP program I learned that she was still in need of all three and would see them weekly....so going to pre-school would help her in all the areas she is behind in....Lillie loves school and is so tired when she gets home and not to mention she is the only student so far....so she is getting alot of one on one attention.









Wednesday, August 4, 2010

My Little Cow Girl Addison.......


Addison started horse back riding today and its as though she was made to ride...Addison has loved horses from the age of 2 years old and has collected horses over the years from Christmas and birthdays ext...So her room has horses here and there and everywhere. Last year she wanted to ride but we wanted to wait a year to see if it was just a thing and would go away....but we sit here at age 6 and will be 7 in Oct with still wanting to ride and so as I said today was her first day of riding at Lemann Stables in Brentwood....Elaine is her instructor and has 40 years of horse experience and is great with kids.Addison groomed her horse named "wendy" she was taught and will be taught every week the same thing.... brushing and cleaning the poo poo out of there hoofs and tons more of ground work before riding . she was able to take the horse out of the pen and walk it to the ring where she was to ride. Tony and I were so proud of her and more so because she was lisening so close to what Elaine was telling her to do. It truly blessed our hearts to see our daughter doing something we know she finds deep joy and that is( 1) being around a animal and (2) riding her favorite animal a "horse". Elaine said Addison has great balance which is good for riding horses and she said she has great confidece in riding a horse...It was such a true blessing to us to see our Addison so happy.



Checking out other horses before riding

Learning how to brush her horse



Get that poo poo girl :)

Addison walking her horse to get brushed and ready to ride



How exciting Addisons first time on a horse





Addison standing and balancing on "wendy" and Elaine with lead rope connected


I love this picture of her she looks so big riding without a lead rope (Elaine doesnt have the rope that connects her to the horse and addison....addison is riding the horse by herself :) yeah!!!!
Addison without the lead rope...riding all by herself


Addison said the funnest thing when she was riding her horse....well the horse was getting mixed signals from addsion who didnt quite have her direction down and using her rains so the horse was going to the fence where we were standing watching and addsion goes" is this horse trained" and Elaine said "yes"
and addsion said "I think it needs better training " lol I said "no sweetie you need the training not the horse" lol it was cute and made us all laugh.