Tony and I decided it was time to change Lillies GI doctor...due to her ability to treat lillie the way she needed to be treated as a patient with Eosinophic Esophagitis..This doctor has said to me herself that she doesnt know much about EE(short for what she has) So it was time to ask her ped if he new any good doctors that know about lillie girl...and sure enough he new one in walnut creek.....
We had our first appointment on Friday with him Dr. Hudad and he actually seen Lillie once in the hospital when lillie was a year old.....before I had went to this appt I made sure to have all the questions I had for him written down on paper...well this guy answered them all before even asking and that in its self was a huge blessing...to know this doctor was on the same page I was on was great...his nurses said he has many patients with EE that he treats daily...I was so excited to know that and as we left they gave us all kinds of stuff for lillie to try and if she likes any of it The doctor said he would call in a perscripton for her to Apria health care...AWSOME because some of the stuff they gave I didnt even know they had it as a option for her to have........
I think to myself "geeze why couldnt we have had this doctor a long time ago" but then I remember because God has a perfect plan for lillie and it was in his timing that we had found this great doctor....Iam thankful to God for this doctor and it is great to know your child is in good care of someone who knows what they are dealing with when my child comes into there office.
Oh and another thing was this doctor got lillie in for a scope for this monday when before we would have to wait 2-3 months before getting in ......Thank You Lord
In case you dont know what scopes are..they are suppose to be done every 3-6 months and its to check for eosinophils in her esophagus..it says if lillie is still allergic and how allergic she is to foods and if she has a lot then they retest her foods to see if new ones appeared over they months ext...they put her under for this because its considered surgery and at least thats wear they do it is in surgery......The hard part will be when she wakes up on monday and cant have anything to eat until after the process is all done....What we will do is hook her up to her feeding tube and give her milk the night before until 12 am so her belly feels some what full when she wakes up.....We will see how she does....she is so much older and is aware of whats going on and it makes me sad because she is not a little baby anymore where she will forget what happens.....so please be praying for her and for tony and I because the hard part for me is when they put the sleep meds on her to breath in....she looks so life less and it makes me emotional.....then again It makes me so thankful to God for her little life...
If you would like to learn more about Eosinophilic Esophagis you can go to www.apfed.org it will tell you more about it.
2 comments:
I am so happy for my niece Crystal that she is in better hands now...Also, what a blessing to have more variety's of food for her diet! YaY!!!
thank you for explaining everything too, I am glad you do that so that we can understand lillie's little body and how it works..
We will pray for Lillie, I know it isn't easy to deal with her the way she will be...Let me know how things go and if mom can't watch the kids I can...Love you!
Sounds like you have found a great resource in the new doctor. I hope that the scope goes smoothly and the results are encouraging. We were at the same point recently with our son’s allergist who worked with mainly peanut & tree nut allergies. After a big search we were just referred yesterday to a new allergist who works with many multiple food allergies kids. Reading your post reaffirms that change can be a good thing sometimes. Thanks for sharing your situation.
Allergy Mum - http://allergymum.blogspot.com/
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