Friday, May 29, 2009

New Formula for Lillie


Lillie's new formula came yesterday and the other formula is not here yet!We were suppose to trial them both to see how Lillie would do!I must say I was a bit nervous to try the Neocate because when she was a year old the doctor put her on it and she literally threw up every ounce she would drink for 3-4 days thinking her body just needed to get use to it and she would be fine but it turned out she couldn't handle it so we put her back on her Pregestimil just to find out a year and a half later she is now allergic to 3-4 of the ingredients in it:(. The great news is that Lillie has been on it for 2 days now and has not thrown up or been fussy!Thank you God!!!!Although she is not drinking it like she would her Pregestimil I do think she is acquiring a taste for it lol !! We will see what happens in the next couple days!!Lillie also started her new medicine for her difficulty swallowing (Pulmicort Respule)mixed with 5 packs of Splenda!Our pharmacist has been a pharmicist for 25-30 years at least and he said he has never seen it used in the way Lillie is using it and he has never seen it mix that way either :) I thought it was funny because his face expression when I picked it up!He said he even called the children's hospital to make sure he read it right:)So Lillie seems to be doing good on it Iam not sure if its helping or if it will but we will see when she goes in for her scope/biopsy in June or July.Lillie still does not have a date yet for her fruit and veggy allergy testing!We should have a date some time in the next week or two and the same thing for Addison..no date yet for her food allergy testing.

5 comments:

The Pichura Family said...

How neat that your doctors are continuing to work on finding out how best to help Lillie..thanks of course to some gentle pressure from you! Keep at it dear friend!!! :)

Brook said...

Praise God the new formula is working out well. :) God is so good! ♥

lisha said...

GREAT MORE INSTRUCTIONS FOR ME TO NO!!!!!!!!!!1 I CANT KEEP UP. I HOPE THIS ONE WORKS.

For His Glory said...

Waiting, Waiting, waiting....On God

Mooing Joyfully said...

Thank you for the updates. I have enjoyed hearing about what is going on so I know how to pray.